Congenital Heart Disease: Addy’s fight

PADUCAH, KY – Two-year-old Addy Rogers passed away last month from complications from a brain injury along with congenital heart disease while she was waiting for a heart transplant in Nashville.

“Addy was the happiest baby ever,” her mom Kristi Rogers said. “Her heart was just tired.”

“She lights up the room,” her dad Justin Rogers said. Addy had hypoplastic left heart syndrome. Only half of her heart was working.

Addy needed a new heart. She had been waiting in the hospital since November. In January, she was too sick to be eligible for a transplant.

“I haven’t been able to go home yet,” said Kristi. “To see all her stuff that she’ll never play with again, all of her clothes, bows that she’ll never wear. It’s just hard. There’s a lot of memories there, and the memories are great, but they are not the same.”

Kristi and Justin brought their memories with them to show me who Addy was. “You never know how long you actually have,” said Justin.

They didn’t know she would only have two years with her. “I would give anything to have her back,” Kristi said.

“CHD needs more research. I don’t want any other mom or dad to go through the pain of burying your child to a disease I didn’t even know existed before her,” Krsiti said. “I had no idea what hypoplastic left heart syndrome was.”

She’s sharing the truth about congenital heart disease by showing photos of Addy with wires, chest tubes, and just after surgeries.

“I feel the important part of those pictures are so people see not all of these kids make it. A big portion of them don’t, and we need more awareness. And we need more funding, and we need more organ donors, because what if someone was (a match) and she was still here,” said Kristi.

You can support the Rogers family at a All You Can Eat Pancake Breakfast from 7 a.m. to 10 a.m., Saturday, Feb. 10, at Bardwell Masonic Lodge. It’s $7 for all you can eat breakfast, and 100 percent of the proceeds go to the family.

You can find out more information about this story and others by following Leah Shields on Facebook and Twitter.

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